I was just on The Chive’s charity site filling in an application for help. I got stuck at the part where I had to show proof of my diagnosis and doctor info. Well my diagnosis is from one doctor, I have an orthopedic doctor, pain doctor and general practitioner. I can only use one doctor and some I haven’t seen for years!
I have this thing called Ehlers Danlos Syndrome. It affects people in many ways, but my hay is pain and hyper-mobility combined with severe fatigue. The connective tissues in my body don’t grow back. Joints dislocate daily and it does not feel good at all. That is me and I am gonna stop harping on it now.
I try not to ask for charity, but things are getting tough. At first I thought a cool therapy pool would work. Then I started thinking. The bane of my life… thought. I thought about how my room is a disaster area. I risk falling and dislocation a random joint every night to pee. Mom is going on 70 and taking care of her 45 years old son. Our house is falling apart because I can no longer work on it.
My father was a Vietnam vet, Purple Heart. We were lifers in the military. I joined up with the USAF, but my then unknown condition led me to an early medical release with a blown knee. These days, everything is blown.
I am in a good place right now, mom got me plane tickets to go visit home, Germany, in April and I couldn’t be happier. Who am I kidding? I spent ages 5-23 over there. I am ecstatic. I just hope my body holds up for this one last journey. I plan on having my first script finished when I return.
Reading all these inspirational letters on The Chive, seeing people set up gofundme.com accounts for people they don’t even know warms my soul. I read about a sick kid, reach for my wallet… only to remember, Government disability only pays me $635 a month.
I don’t want pity. I want a home, a safe hope. One where a 70-year-old doesn’t have to rake leaves. I want the pain to stop, it wont, but one of those hot-tub/swimming pools sounds like heaven. I am not asking for someone to start an indiegogo or gofundme page. I just wanna get out of bed once in a while, talk to mom and not worry about the house falling.
So last year at this time, I decided to promise myself something. Since New Years Resolutions always go bust, I just made a simple statement about how I was going to do something big the following year (2014).
Well I had all these great writing/photography gigs set up and thought this was my breakthrough year. I had a comic script I was working on, a novel and a host of other projects that would fulfill my definition of big. Well EDS and other mysterious illnesses foiled me along with my ineptitude. .
As my main talent these days is writing, I thought it was gonna be a cakewalk. Well enter unknown, bone eating whatever the fuck. Suddenly my hand, well pinkie but hand sounds better, was having its bones chomped on, and it hurt. I went to my ortho doc and he thought it was some arthritis shit. He goes in, fuses finger joints and tests to see what it was. He couldn’t find out, it was some anomaly. So I am laid up for months with some Wolverine, metal rod stuck in my finger. Typing is hard one handed people.
Then concert gigs! Yay! I got to see the last Motley Crue tour, go backstage and meet the guys, but no press. The freaking venue didn’t allow it. Fuckers. After bragging that I would have a huge scoop, band after band PR people started… not calling me.
So this past year sucked. I have some personal plans for next year, but I am at the fuck it stage right now. Money is tight, gotta pay for medical shit and get the hell out of debt. That is why I am selling my most prized possessions, stuff Nikki Sixx and Crue signed. I am even including the signed copy of The Heroin Diaries that has kept me clean all these years. Here is the link to the eBay auction.
Kerri Kasem has opened a new store(smoke bar?) down in Hollywood. called Good Vapor. Photos on the website look great. The place is clean and trendy and the people amazing. I recently spoke to Jesse, my nemesis in the daily struggle for Kerri’s affection (He has already won and I truly like the guy), and he gave me the rundown on all things Vapor.
They have an extensive menu of healthy alternatives to tobacco and top of the line vaporizers at very good prices. So a Pro-kit is zooming my way, and if I can stretch this last pack of cigarettes, I will soon be smoke free. No more spending $5+ a day for the sticks of death. I am totally committing myself to doing this. My health sucks as it is so doing this will make me feel so much better. I will give you my review of the vaporizer after I get it.
Don’t forget to check out my last post about her new Kasem Cares Foundation. It is a sad situation but also inspiring with the way she is fighting back. The best part about it is, you can help!
So head on down there, visit the site, call (310) 276-1788 or email them at GoodVaporBeverlyHills@Gmail.com
Just for a minute, I am going to assume that everyone who reads this had a good relationship with their fathers OK?
Everyone of us clashed with our dads at one time or another, it is natural teen angst. My dad was a tough as nails military man, while I was a long-haired, tattooed, wannabe rock star. He must have hated it. Yeah, he would threaten me with a trip to the Army barber now and then, but I gave him good cause. One day he had to take off from work (in the army), drive half an hour to the Nuremberg police station and pick me up. I had been caught with friends skipping school and we were wandering around the Red Light District, just looking. That was the longest drive home ever.
Dad didn’t yell. The whole trip back was silence. I squirmed in my seat, coughed and tried to stop the squirming and be as still as possible. When we got home, he would let me have it. He was never violent, I got the belt maybe twice in my life and those times it was for something worse than looking at hookers. Imagine a 30 year, Vietnam vet. Combat tried and tested yelling at you. Pretty scary. Guess what I did? Fainted. BAM! Flat on my face and slowly woken by our dog licking my face. It wasn’t over though. Because I fainted, the discussion turned to “Are you on drugs?”. I wasn’t, I was scared. Finally he dismissed me to my room. I put on some Motley Crue and tried to relax, cursing my dad for not understanding me.
My dad is gone now, passed years ago but I still miss him every day. I would give anything to have just a few more hours to really talk to him. This is similar to the spot my friend Kerri Kasem is in now, but she has hope. Her dad, the legendary radio and TV host of American Top 40 Casey Kasem, is in poor health. His wife (you may or may not remember her from that horrendous Cheers spin-off The Tortellis) Jean Kasem, has been blocking Casey’s children from seeing him. I really hate to say this, and it pains me to do so, but Casey Kasem is not long for this Earth. A man is dying and is ditz wife bars his kids from even seeing him without an armed guard present! She has even gone to the lengths as to brag that she was about to star on the next season of Housewives of Beverly Hills! Made a fake Facebook account under Casey Kasem’s name just to trick people into tweeting their support for her in this role. REALITY CHECK! Casey Kasem does not use the computer, he unfortunately can’t. Also, he is a man of such standards he would never peddle trash like that. Never in my life have I ever heard an ill word spoken of him. And because of that formerly blond (yet still a) bimbo, his children don’t get to spent the right kind of time with a father who is near his end.
“Well I heard it was about the kids wanting money.”, wrong! Kerri has money, her sister does as well. Kerri’s brother is the number one radio host in Singapore and has two TV shows! They don’t want money, they just wanna see their dad. Casey raised them right. Last night on KABC talk radio, Kerri recounted her childhood. She didn’t have the regular Hollywood kid upbringing. Casey never gave her a credit card to go buy frivolous things, if she wanted something Casey told her to work for it. Boy has she taken that to heart now.
Kerri’s sister signed an agreement, but Kerri would not. I believe she was right in refusing as no child should have to bargain, beg or sign away a parent. With that, she decided to fight, to go to work. Sure she could have just gone to court and had her own battle, but she knows that there are thousands out there in her exact situation. There are no laws for a judge to rule on for children’s rights when it comes to ailing parents. Kerri and her layer Troy Martin, have partnered with Assemblyman Mike Gatto who is sponsoring the new bill aimed at giving children the right to see their ailing parent. She has started a foundation, Kasem Cares and is taking donations to help pay lobbyists and get this law passed as fast as she can. She is short on time and knows it, but she also wants to hear from you. She wants your story if you have been in this situation or still are. She fights not only to see her dad, but to make sure others don’t have to endure the heartache she has.
I would also ask you to tweet Assemblyman Mike Gatto @mikegatto and thank him, use the hashtag #ThisBillShallPass Go to Kerri Kasem’s Facebook and give her your stories and support. She really reads everything you post there. Donate at KasemCares.org Do something. I would give anything for just one moment with my dad, don’t let her moments be taken by formed, wannabe actress. (I am so pissed at her, sorry)
Above all, keep Casey Kasem in your thoughts, Kerri as well.
Last year, legendaryinker Mark McKenna revived his one shot comic “Combat Jacks” but did like any good movie director does, made that one a Directors Cut. Now he is raising funds to continue the story of tough space marines vs evil pumpkin=like creatures. What are they? Are they the offshoot of earthly gourds? Well donate and find out. He has some amazing original art up as rewards, even women shoes with the comic print on them. Crazy!
This is Dennis. He is going through some tough stuff, but he still believes in HEROES! Cos-players from around the world are coming together just to make this guys Holidays a bit more cheerful. He REALLY believes in the characters we “dress up” as. We are calling on the cos-play community to do one simple thing, send Dennis a card or photo of you IN CHARACTER. You are 501st, send a pic as a TK. You play Spidey? Have “him” or Peter Parker shoot a photo to him. Whoever you co-splay, BE THAT HERO. Send a card to Dennis. If you want the address, PM me or go to the page https://www.facebook.com/IAmSpartan223 to see everyone in action.” – Deaderpool
Alright everyone, this is Dennis who is 55 years old, mentally and physically disabled, and has terminal cancer with 5-6 months to live and he loves superheros as if you couldn’t tell by his awesome PJ‘s!
For those who are going to send love & support for Dennis, kindly find his mailing address in this post’s comment.
Spartan 223‘s personal fb has been temporary blocked from personal messaging due to replying everyone to ask him for Dennis address.
For those who are going to send love & support for Dennis, kindly find his mailing address in this post’s comment. Thank you. — with David Johnston Jr and James Fipps.
Alright guys, I have a request. If you’re a Cosplayer I need your help. Meet Dennis who is 55 years old, mentally and physically disabled, and has terminal cancer with 5-6 months to live. He loves superheros as if you couldn’t tell by his awesome PJ’s! My request to you is, lets get this guy some Christmas Cards and inside lets put a picture of our character with a signature. If you’re interested in doing this please let me know, I’d love to make this happen so I can get these mailed in time for Christmas!! — with James Fipps.