EDS… KCCO


I was just on The Chive’s charity site filling in an application for help. I got stuck at the part where I had to show proof of my diagnosis and doctor info. Well my diagnosis is from one doctor, I have an orthopedic doctor, pain doctor and general practitioner. I can only use one doctor and some I haven’t seen for years!

I have this thing called Ehlers Danlos Syndrome. It affects people in many ways, but my hay is pain and hyper-mobility combined with severe fatigue. The connective tissues in my body don’t grow back. Joints dislocate daily and it does not feel good at all. That is me and I am gonna stop harping on it now.

I try not to ask for charity, but things are getting tough. At first I thought a cool therapy pool would work. Then I started thinking. The bane of my life… thought. I thought about how my room is a disaster area. I risk falling and dislocation a random joint every night to pee. Mom is going on 70 and taking care of her 45 years old son. Our house is falling apart because I can no longer work on it.

My father was a Vietnam vet, Purple Heart. We were lifers in the military. I joined up with the USAF, but my then unknown condition led me to an early medical release with a blown knee. These days, everything is blown.

I am in a good place right now, mom got me plane tickets to go visit home, Germany, in April and I couldn’t be happier. Who am I kidding? I spent ages 5-23 over there. I am ecstatic. I just hope my body holds up for this one last journey. I plan on having my first script finished when I return.

Reading all these inspirational letters on The Chive, seeing people set up gofundme.com accounts for people they don’t even know warms my soul. I read about a sick kid, reach for my wallet… only to remember, Government disability only pays me $635 a month.

I don’t want pity. I want a home, a safe hope. One where a 70-year-old doesn’t have to rake leaves. I want the pain to stop, it wont, but one of those hot-tub/swimming pools sounds like heaven. I am not asking for someone to start an indiegogo or gofundme page. I just wanna get out of bed once in a while, talk to mom and not worry about the house falling.